A lot of the visitors to this blog have come looking for information on a birth defect called renal agenesis.  I have lost two little boys due to bilateral renal agenesis; Max was induced at just under 20wks gestation and Nicholas (Nudge) was carried to term and delivered at 38wks.  Over the last eighteen months I have read everything I can find on renal agenesis and have been in direct contact with the only researchers who are working on learning more about it.

Most mothers who are carrying an affected baby usually find out in their fifth month of pregnancy and are faced with the excruciating decision to either end the pregnancy or continue.  Having done both, I know which path I would take if faced with it again but ultimately every pregnancy is different and you have to do what you feel is right.  If you are struggling to make this decision, or just have some questions about early induction vs carrying to term, please contact me for a chat.  Furthermore, if there is something you want to know about renal agenesis, I can most likely provide the answer and welcome the opportunity to talk to other mums with RA babies.  Just leave a comment (your email address won’t be published) and I will reply to you directly.

I have compiled a fairly extensive list of syndromes that are known to cause bilateral renal agenesis.  The list is not complete and the syndromes listed do cause other birth defects but it may still be useful to you.  You can find that list here.